HISTORIC East Cowes Town Hall will be the only Isle of Wight representative to shine a spotlight on the rare genetic condition neurofibromatosis (NF) — as it lights up blue for World NF Awareness Month this weekend.
The landmark will in the nationwide awareness campaign — joining 229 sites across the UK and Ireland to take part in the Shine A Light On NF initiative on Sunday (May 17).
The effort, led by Nerve Tumours UK, aims to raise awareness of neurofibromatosis, a complex and incurable genetic condition.
Often referred to simply as NF, the condition causes tumours to grow along nerve endings and affects more than 26,500 people across the UK.
It includes three distinct types — NF1, NF2-related schwannomatosis and schwannomatosis.
Despite being one of the most common neuro-genetic disorders, it is still classed as rare.
The condition can be inherited, with a 50 per cent chance of being passed from parent to child, although half of all cases occur with no previous family history.
Nerve Tumours UK has spent more than four decades supporting those affected, including families on the Island cared for by a specialist NF nurse, linked to the Wessex Clinical Genetics Service in Southampton.
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